Twenty two

the chromosome deletion (catch 22) that caused my daughter open heart surgery at 7 months old, severe scoliosis, learning disabilities, pulmonary valve replacement at 12, and scoliosis repair at 13.

Fortunately for her she had a mama with faith to move mountains and an army of support who helped me raise her as if the only thing making her different than her peers were the “zippers” on both her back and chest.

Most children born with DeGeorges Sequence aren’t as fortunate as she’s been and I am so proud of the young woman she has become because of the odds against her.

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